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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi, I am very happy!!! I received a phone call from Dr Kaul this morning, and he said he is very happy to take me on as NHS patient, I just need to get referral from my GP. I have an appt for week after next with one of the senior GPs so hope this will get the ball rolling!!! Things are changing for the better. Also collected my script from the pharmacy today, on 30mg prednisolone for one week, then reducing over the next week to 5 mg on a regular basis.  BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Fantastic Barbie!
I'm so happy for you.
Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Very good and welcome news Barbie! Will be good for you to have someone that you can trust and relate to.
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi Barb,
That's excellent news! Glad you've been given some meds to help in the short term.
Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Good for you Barbie- patient power-that's what we like!!! YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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oh goodie!
pleased he is going to take you on
well done for asking.
Jenni xhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/14/2009 Posts: 61 Location: Lancashire
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Hi Barbie, Good for you, shows you can move consultants if you want to.
Good luck, John.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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That's great I love to here good news. x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Yippeeee Barbara - am so chuffed for you and hope the steroids kick in soon for you.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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lovley good news so so pleased for you so next step gp to do referral brill glad u got script for steriods will help u alot in meantime. t care catch up when im back.lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 235
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Great news!!! Deb x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Oh this is just wonderful Barbara!
What an achievement- I wish you many happy years together! LOL
Love as always,
Amanda
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Thank you everyone for your lovely comments. I was so surprised to get the call from the consultant himself. What a difference to Guy's clinic!! Will keep everyone informed x BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 11/28/2009 Posts: 238 Location: North London
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fantastic! remind me, where's he based?
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Fantastic news. Well done for persevering.
Take care
Jackie
xx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi merryberry, he is based at the Royal Free at Hampstead. Quite easy to get there from here, jubilee line to Belsize Park and a short walk, may be as quick as getting to Guy's.  BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Glad you got onto your rheumy's NHS list - I hope your treatment is now full steam ahead!
Lyn
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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hi good news great . And also the royal free has an scleroderma unit Barbara and knowageabe . you may have hit the spot . Christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Christine, oooohhh!!! I didnt know about the scleroderma unit!!! Sounds very impressive. Hopefully at my appt on 12th Feb I will get results of the tests, the official ones anyway, as the consultant at London Bridge hosp said that the haemophillia unit may not know what to look for. Really looking forward to transferring over though. Feel more confident about treatment now BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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yes its has a scleroderma unit .And its where poff Denton works and Dame Carol Black . They take on diffacult cases if scleroderma is involed . i am very luckey as my Rhumalolist used to work there and has seen scleroderma so i have no worries about him .He is a good man .( i don,t need to go yet to London ) I have only been there for the scleroderma AGM .Yes easy to get there i also belive there is a bus from Kings Cross ???? They see lots off people with overlaps there .So i think you will get along great . Chrissy The chocolate eating housewife ...The washer woman .....naughty lady
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